A Chinese scientist says he edited babies’ genes. What are the rights of the genetically modified child?

He Jiankui, a Chinese researcher, spoke at a conference on human genome editing in Hong Kong in November and claimed to have helped make the world’s first gene-edited babies. (Kin Cheung/AP)

With the claim that the first gene-edited babies have already been born in China, a science fiction has become a political fact. And the world needs to consider how these children might be treated.

In July 2018, the Nuffield Bioethics Councilpointed out that there is “no international treaty of general application” designated for the “direct” regulation of the human genome or its modification. It called for governments to work within extant “international human rights institutions such as the Council of Europe and UNESCO” to foster robust public discussion and international governance for genome editing. It recommended that governments create an “international Declaration” affirming that “people whose genomes have been edited should be entitled to the full enjoyment of human rights.”


About Kevin Yaworski

I use my blog to write about things that I think are a matter of public interest or that I think others will be interested in
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